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ASSOCIATION OF PERSONS WITH CEREBRAL AND CHILD PALSY "NAŠE SRCE" PETROVAC NA MLAVI
CDP "NAŠE SRCE" Petrovac na Mlava
Association of persons with cerebral palsy and polio "OUR HEART" Petrovac na Mlava
CSO "OUR HEART" Petrovac na Mlava
Mat no: 28332360
PIB: 112767890
Bank account numbers:
200-3452660101874-40
840-0000050482763-73
Ul. Krajiška 11A
12300 Petrovac na Mlava
President
Ivan Ilić
Tel:
+381 62 8362350
Gorica Gavrilović
+381 69 4748740
E-mail:
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At the initiative of parents of children with disabilities, we came up with the idea that each of our activities should be crowned with something common, and that is a name. This is how the initiative to establish the association was born. Our original goal was to bring our children together, to enable them to be seen in our society and to raise the awareness of all of us in the environment. To show our children that they are not alone and that they are part of our wider community and the most important thing is that they are part of our heart. That love for them alone - gave rise to the name we agreed on and collected, which is the name of the association "Our Heart".
The association of persons with childhood and cerebral palsy "OUR HEART" has been in existence for one year - more precisely since 22.12.2021. year when it was registered.
Mission
The association's mission is to support persons with disabilities in exercising their legal rights, improving their remaining capacities, improving the quality of life and creating conditions for social reintegration into the local community.
A vision
The association's vision is to raise the quality of life for both the association's members and their families through a recognizable way of engaged gathering and activities of people with this type of disability, and through acceptance by the local community to mutually create a high-quality and generally acceptable coexistence of the entire community at the highest possible level in developed countries.
Objectives
The main goal is the association of persons with cerebral palsy and children's palsy as well as their parents who have a common interest in realizing their rights from disability protection related to treatment and rehabilitation, education, professional training, employment and other rights.
- Mitigating the problem of discrimination against persons with disabilities and better acceptance in the local community
- Ensuring equal living conditions for persons with disabilities
- Removal of technical barriers by adjusting living conditions for persons suffering from cerebral palsy and infantile paralysis
- Developing positive attitudes and relations of the cooperative of persons with disabilities in relation to the local community through information and education programs.
- Creation of conditions for independent living of persons with disabilities based on remaining abilities through projects of alternative forms of education adapted to these persons for employment opportunities as the ultimate goal of social integration.
- Development of professional and creative abilities of members of the Association.
Regular activities
- Records of membership and monitoring of needs for a better understanding of the social, material and overall life situation of our members.
- Material support to the most vulnerable members through concrete humanitarian actions.
- Connection in the local environment with related humanitarian organizations, institutions, local government and other non-governmental organizations.
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According to the so-called official science:
Poliomyelitis (lat. poliomyelitis) is an infectious disease that is transmitted through the oral-fecal route, most often affecting children between the ages of 3 and 8, while it occurs much less often in adults, but leaves more serious consequences. Although the poliomyelitis virus (which causes polio) in 90-95% of cases does not cause any symptoms, if it penetrates the nervous system (when the so-called aseptic meningitis occurs) it can lead to the destruction of motor neurons, muscle weakness and paralysis.
Official statistics show that in half of those who experience paralysis within a month (6 to 8 months at the latest), all functions return to the state they were in before the onset of the disease, in ¼ to a partial recovery, while as many as 25% of people leave this disease permanently. reduced motor functions, which can be accompanied by visual and hearing impairments, as well as difficulties in speaking, breathing and swallowing.
Depending on the consequences it leaves on the daily functioning of the affected person, poliomyelitis can be divided into three basic types:
Spinal (79%)- Causes weakness or paralysis of one or two limbs, leaving no consequences on speech, breathing and functioning of sensory systems
Bulbar (2%)-Leaves consequences on the functions of breathing, speech and swallowing
Spinal-bulbar (19%) - represents a combination of the previous two - leaving consequences on the functioning of the extremities, speech, swallowing and breathing
Thanks to Jonas Salk, who discovered the vaccine against polio in 1952, and Albert Sabin, who found a way to use it orally in 1955, today the number of people suffering from polio has significantly decreased in the world. Timely vaccination is the best way to prevent polio, while early rehabilitation can achieve significant results in children who have already suffered from the poliomyelitis virus.
With mass vaccination, cases of poliomyelitis (polio) have been dramatically reduced in the developed world. In 1988, the World Health Organization and UNICEF started a campaign to eradicate this disease. In 1988, 350,000 cases of polio were registered worldwide, which was reduced to 1,310 cases in 2007. The Americas was declared a polio-free continent in 1994. In 2000, polio was confirmed to have been eradicated in China, Australia and 36 Pacific countries. In Europe it happened in 2002. As of 2006, cases of poliomyelitis (polio) have been recorded in only 4 countries: Nigeria, India, Pakistan and Afghanistan.